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Showing posts with the label WishUponAHero

Hydranencephaly; Or, The Bees

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A note: since I changed my blog name and address, I had to create a new Facebook page.  Please go like the new page here:  http://www.facebook.com/EmilyRachelleWrites Recently I shared information about a website called Wish Upon a Hero .  One of the wishes I discovered there was actually for the wisher's friend, a woman with three kids.  Her three-year-old son has hydranencephaly and the wisher wanted to spread awareness about this rare disease. NINDS, the National Institute of Neurological Disorders and Stroke, has an information sheet on hydranencephaly.   Here's their explanation of what hydranencephaly is:

Wish Upon a Hero

My real-life friend Kathryn blogs at SingingThroughTheRain.net ; she's a military spouse and special needs mom who blogs about family, marriage, parenting, special needs, military life, and Christianity.  I was actually interviewed about life as a military brat (the actual term for a child of a service member) a while back. Recently a guest poster on her blog mentioned a website called Wish Upon a Hero .  It's a bit like the Make a Wish foundation, except it's independently run and anyone can make or grant a wish.  (Which also means there's not an actual foundation granting the wishes; individual members do that and thus become the wisher's "heroes.")